Sayuri Dalvi has not had it easy in her life but that hasn’t deterred her in keeping pace in continuing the journey with her son who is a specially abled child.
Sayuri is a single parent, a marathon runner and also a mum and individual who is ready to acknowledge faults, depression and overcome it with little joys in life. In a telecon Sayuri shares with Mums and stories her journey until now.
“It was 12 years ago when my son Vihaan was around 4 to 5 months old that it started happening. He was extremely cranky, did not have eye contact with me or others around him and all the milestones were missed.
Perhaps I was in complete denial and I really didn’t want to pay attention to the warnings. It was a phase until my parents literally pushed me to get him checked with various doctors. Until then the pediatricians who had checked him didn’t talk of autism to me. Finally it was one pediatrician who confirmed that my son had autism. He was almost two by then. In the span of time where I was burdened with questions like ‘why me’? ‘Is it true’? I was lost in my own thoughts and I think I didn’t pay attention to my marriage as well. Due to various other reasons I got separated after seven years of marriage.
All of this led me to lose focus and I had become completely shattered; I started putting on weight as I was as I was least bothered of my health. I went on to do binge eating and it again took my parents to shake me up and question why I had lost focus and interest as compared to being quite physically active right through childhood and teenage years. They were persuading me to get on with life and take charge rather than brood. It has been on numerous occasions I have gone into depression and I manage to come out of it too.
So I started going to a gymnasium and it once so happened that the gym was closed. I had to go and jog outdoors and I kept running. Sooner than I realized; I understood that I really loved running and it was liberating for me.
In 2007 I enrolled for a marathon and soon I started doing many of these marathons. It came to a stage where I would feel that if I had not been exercising outdoors like running in my schedule, I started having withdrawal symptoms.
I have been growing up with my son. We are in touch with his dad and I am happy that he gets to interact and bond with his dad too.
I truly wish people will be more sensitive and be more acceptable towards special children. Earlier I have also organized marathons like ‘Awetism’ to build awareness. Autism is largely misunderstood or most people still are not aware of the behaviour towards autistic individuals.
Thoughts like what will happen when I am not there or when I very often realize my child is highly dependent on me I get worried. But I must say he is slowly learning to be on his own.
I hope he will be independent and takes care of himself. Even his school has now started weekly session of teaching them how to cook.
One thing of course I am sure about him and me is that “We are trying our best.”